Tuesday 20 December 2011

Wow!! Just found out the total raised from the London to Paris cycle ride completed with Shaun Nicholas, Now his company Archant have matched his contribution we have a grand total of £3813 
Thank you all sooooo much for your help in getting us to this amazing amount.

Monday 25 July 2011

Paris

It been over a year since we started planning Ride4Ruby, we have now completed the 330 miles from Trafalgar square to the Eiffel tower.
Our last day Cycling into Paris was difficult the milage was only 35 we just never got going with traffic lights on red, traffic generaly and road closures for le tour de France I think by the time we got to the Eiffel tower it was nearly as long as our previous days cycling. On arrival at the Eiffel tower we got the photos to prove our trip, then headed off to watch the end of the tour.
With the tour fininshed we headed off to find our hotel to get freshened up then off out for food and a few drinks.

Saturday 23 July 2011

Abbeville to Villier St Paul

With 80 miles Ahead of us the 5 am storm did not bode too well for us today. After a bit of supply shopping we left Abbeville heading south for Villier St Paul, after my slight altercation with a bus we began to make good progress in reasonable weather.
The weather soon turned sour, giving us a good soaking for our efforts! Pete seems to have perfected hill climbing leaving me for dead on most of the steep gradients, something us Norfolk boys are not used to. We have passed through some fantastic scenery and ridden on the best roads ever, it's a pity it has to end soon.
Riding together we have both had our 'darker' moments, when being on a bike, lost, in the middle of France in the rain is the last thing you want to do. But having a great mate with you to spur you on is a real tonic. Chapeau Pete.
We have decided to sack our 'guide dog' Jack, he has been of no use at all, he never seems to be able to send us in the right direction at all!
Having just returned to our room after our meal and a couple of pints of 'painkiller' thoughts once again return to friends and family, we are missing you all immensely and cannot wait to be home. Today's highlight must be reading our sponsorship total at over £1800 !!!
It makes everything so worth while. Thank you all so much xxxx Ride safe guys Shaun x


Ps

Abbeville

Calais to abbeville looked like it was going to be wet and windy, it soon changed becoming sunny and quite warm the windy was strong but in our favour most of the time.
The journey consisted of 40 miles of some quite long up hill rides then flatting out for awhile with the last stretch giving quite rewarding down hill sections.
On arriving at our cubical the long awaited hot soak was not possible with no room for us and the bikes.
A vast quantity of food was consumed to replenish what had been zapped from us on the route.

Laying here in bed I hear thunder and rain so not really looking forward to cycling today as the terrain holds some long climbs for us Norfolk boys.

Friday 22 July 2011

Calais

After leaving London we cycled in to the Kent rolling countryside well it felt more like the alps in places. We stopped for a pasta lunch in Maidstone which went to a very good home, only stopping for about 1/2 hour taking on more fluids for the rest of the trip down to Dover.

The weather has been very kind to us so far with only light rain as we cycled from London into Kent.

On the ferry we had been chatting to a coupled who were driving down to see the tour, while waiting to exit the ferry the woman came over and handed us £20 asking us to donate this to ride4ruby, how very generous we don't even know there names.

With a well deserved pain killing beer last night we checked our route down to Abbivile then off to bed.

Tuesday 5 July 2011

And in my bag I packed...........


Pete and I have been trying to 'organize' ourselves for the trip. We are both taking rucksacks, problem is what do we take with us? I have been packing and unpacking my bag with various bits and pieces, the usual toothpaste and deodorant comination will of course prevail, but as far as clothing goes I cannot get my luggage down to a reasonable size.!
I will be making another trip to Cycles UK later this week and the more I think about things the bigger the list is getting, the list of 'spares' seems to increase the closer the departure date gets!! Maybe just one more spare tube, or another pack of gels? I haven't even considered how much underwear to take (maybe I can get away with turning certain items inside out?)
All in all I am sure Pete and I are going to have a great experience along the way, we have been avidly watching the Tour De France. It's strange to think in a few days time we will be in France watching the great race ourselves, hopefully we will have managed to do some laundry along the way !!

Ride safe,
Shaun.

Tuesday 7 June 2011

100 not out!

We had a great ride out on Sunday, completing the Norwich 100 mile ride in 5 hours and 37 minutes.
As you can see the ride wasn't without it's moments of hilarity, as Pete gets some 'advice' on how to repair a puncture from the locals in Cromer! It has been a number of years since I have ridden amongst so many groups of riders, it really is an excellent feeling being towed along by bikes in the group. The warning shouts of cars and trees (yep, I very nearly came to grief with a fallen tree in the middle of the road!) helped immensely, as well as the very courteous car and motorcycle road users!

The route took us out from the Norwich Cathedral at 7am and towards Reepham, Binham, Hindolveston. The  North Easterly wind was firmly in our faces all the way up to this point, then as we hit the coast the wind did give us a very welcomed assist. First time this year I have seen the sea crashing against the sea wall at Walcott, giving everyone a cool shower along the way. The coast road from Sheringham along to Sea Palling is one of my favourite stretches of coastline in Norfolk and cruising amongst a group of fellow cyclists made it even more special. Thanks must go to Velo Norwich rider Chris Preston for showing us how to hit the climbs (and showing us a clean pair of heels!).

It was a perfect day and a perfect ride in readiness for London to Paris, well organised and a great route.
Ride safe,

Shaun.

Sunday 22 May 2011

Getting closer to the Paris ride now!

Its may the 22nd already this means it's only 2 weeks to the Norwich 100, which we have been looking forward to but it's also a test to see how well we can cycle the next day.

This week we have finally booked the trains to and from London, the ferry has been booked and the extra night in France due to the cost of returning on the sunday via TGV.

Ruby has demanded that Jack (the dog) comes with us also she is now saying she will cycle with us as she has ran 100meters before so a 100 miles should be easy.

Training has been going well for both of us while we have not trained together much I feel we are both up to the task.

Monday 2 May 2011

Och Aye Laddie!!



Well, we did have a good look, but despite all our hard work we did not find Nessie in Scotland! I have just returned after a weeks break in the Highlands and all I can say is 'why the heck didn't I take my bike!'. The weather was fantastic, and the scenery stunning. We did manage to hire mountain bikes for a couple of days which helped to keep the legs feeling good; Norfolk really does not have any hills!

As Pete has already said the guys at Cycles UK Norwich have come up trumps and donated a couple of great jerseys for us to use on our trip. We will be having photos taken this weekend to post on here and on the JustGiving site. The training has been going well and we are both looking forward to doing the Norwich 100 on the 5th of June and hopefully we will be riding directly after on the 6th to see what it is like riding straight after a long day in the saddle!!

Just managed to catch a bit of the Liege-Baston-Liege today and Philippe Gilbert is on top form at the moment, 3 spring classic wins to his name, very , very impressive! Will be interesting to see how well he does in the Giro D'Italia .

Ride safe,

Shaun.

Sunday 24 April 2011

New Jersey

We now have 2 cycle Jerseys a big thanks to Rob & Bill at Cycles UK for the donation. 
























With all the summer sun both Shaun and myself have started to get the miles in, leading up to the Norwich 100 which  is adding to our training. 
More issues with my bike means I now have 2 complete new wheels. 
Ruby is starting to understand the size of the task we have set ourselves, she has still not offered to take my place but I'm working on that one.





Tuesday 29 March 2011

Whats it all about.



Below is why we a trying to raise as much money as possible.

Statement from the Cystic Fibrosis Trust

Over the last decade, the Cystic Fibrosis Trust and our supporters have made a considerable investment in world leading research to determine whether gene therapy to the lungs is a possible treatment for people with Cystic Fibrosis.
In 2008, for the first time ever, a potential gene therapy for Cystic Fibrosis entered preliminary clinical trials and thirty people with Cystic Fibrosis have received a single dose of the treatment to test for safety.
The Cystic Fibrosis Trust has provided more than thirty million pounds to the Gene Therapy Consortium over the last nine years, reflecting considerable tenacity from donors, researchers and clinicians, as well as carers and patients living with Cystic Fibrosis. The potential clinical benefit of gene therapy is yet however still to be proven and there is a long way to go.
Since 2008 the Cystic Fibrosis Trust has, like many other charities, experienced a significant drop in income and the fundraising environment and resources available to the Trust remain extremely tight.
Getting both the science and the funding of this research programme right is not easy and in the current economic climate the Trust has had to reassess both its own costs and its commitments. To make this reassessment and to ensure the available resources are being used as effectively and efficiently as possible, we have asked the UK CF Gene Therapy Consortium to fully review where the research programme has got to so far.
In a more constrained funding environment the Trust’s aim is to realise benefits from the investments to date in the shortest possible time frame. The research focus is now to demonstrate specific outcomes, such as testing efficacy in the lung, and preparing the gene therapy programme to be managed by a pharmaceutical partner.
We can all be proud of our work to seek a gene therapy treatment for Cystic Fibrosis. Since the 1990s the Trust has funded much work into a possible gene therapy approach to tackle the basic cause of Cystic Fibrosis in the lungs. We can reassure supporters that we are very keen to support the work of the UK CF Gene Therapy Consortium as best we can in its attempt to conclude whether gene therapy to the lungs of people with Cystic Fibrosis has got useful clinical and therapeutic benefits.
This programme of work has been an enormous commitment for many people, not least people living with Cystic Fibrosis who have been directly involved in the trials to date. We all hope that the investment and effort to date will yield some clear indicators as to whether gene therapy can become a significant component in the future treatment of Cystic Fibrosis.
We are therefore now working with the Consortium on a revised programme and we will put this on our website as soon as it is available. Whatever the outcome ofthe reassessment and the revised programme, the Cystic Fibrosis Trust expects the UK Gene Therapy Consortium to remain its single largest research project.
At the same time as reassessing the programme, we are actively looking at how we can continue to fund the future commitments to the Consortium and we will be seeking support from other organisations, including the Government, medical research bodies and others, to enable the work of the UK CF Gene Therapy Consortium to continue to maximise its chances of success.
The Cystic Fibrosis Trust continues to support other research as part of the international fight against Cystic Fibrosis, works to improve standards of clinical care in the UK, and provides direct support to people living with Cystic Fibrosis and their families.
To enable the further investment to happen in the gene therapy research the Trust would of course be delighted to hear of potential new sources of funding for this work. If you feel you can help then please contact Matthew Reed, Chief Executive of the Cystic Fibrosis Trust. Thank you.

Monday 14 March 2011

Sore feet!


Sunday 13th March 2011 was a bit of a trip down memory lane for me. A few years ago (I will not say how many!) my Dad would take my brother and I for a Sunday drive to one of his favourite watering holes. Marlingford Bell was a typical country pub, chickens in the garden and a good acre or so to explore and exert our excess energies. I was hoping that excess energy would be abundant on Sunday as I passed the pub,because a couple of thousand runners and I would be passing the Bell for this years City of Norwich Half Marathon. 
To make it even more special on my second passing of the pub I spotted Pete with his lovely girls Katie, Phoebe and of course Ruby (Fred) sat at the side of the road, signs held aloft encouraging me to Go Go Go! Ruby gave me the biggest hug, I will never forget it!  It made the last couple of miles a whole lot easier to run, with a grin on my face from ear to ear!
The weather seems to have improved a bit, I rode to work today without the need of my jacket, (Pete knows I hate riding in that damn thing!!!), looking forward now to sunny days and long rides together. The present Mrs.Nicholas picked up her new steed today, a Marin Larkspur, apparently the colour was 'nice'! Hopefully it will serve her well in June when she rides from London to Brighton!

Ride safe,

Shaun.

Monday 7 March 2011

Saturday 5th March


Pete and I set out for a ride of approximately 40 miles on Saturday afternoon. Having only just risen from my slumber, (night shifts!), I had a quick coffee and we set off . It was soon evident that the lack of food taken before the ride was hindering my performance, to be honest I felt damn awful. Stalham high street provided us with the necessary bag of Jelly Babies that soon had me feeling better ( this was after Pete had managed to destroy the shopkeepers wonderful display on the serving counter!!). We set off again, and the hunger 'bonk' I suffered subsided and we managed to maintian a very respectable pace. By the time we returned home I felt a whole lot better for the outing, just proves that you cannot ride with no food on board!!!

Ride safe,
Shaun.

Saturday 5 March 2011

Symptoms of Cystic Fibrosis
Cystic Fibrosis causes the body to produce thick secretions that particularly affect the lungs and digestive tract.

Symptoms of CF can include a troublesome cough, repeated chest infections, prolonged diarrhoea and poor weight gain. These symptoms are not unique to Cystic Fibrosis.

Cystic Fibrosis affects a number of organs.

Lungs

It is common for people with CF to encounter some difficulties with their lungs. A combination of physiotherapy and medication can help control lung infections and prevent lung damage. To avoid the risk of cross-infection, it is recommended that people with CF do not come into close contact with others with Cystic Fibrosis.

Digestive system

Cystic Fibrosis affects the pancreas, which makes it difficult for people with CF to digest food. This can cause malnutrition, which can lead to poor growth, physical weakness and delayed puberty. There is medication that can compensate for the failure of the pancreas.

In older patients, insulin production can become deficient due to increasing pancreatic disease. Some develop CF related diabetes mellitus and their blood sugar levels are no longer controlled. This rarely happens to children with Cystic Fibrosis.

Common symptoms of diabetes include thirst, hunger, weight loss and excessive need to urinate, but some people do not show obvious symptoms of diabetes.

Other Affected Organs

In every ten babies born with CF, one is ill in the first few days of life with a bowel obstruction called meconium ileus. In these cases, the meconium (a thick black material present in the bowels of all newborn babies) is so thick that it blocks the bowel instead of passing through. Babies with meconium ileus often need an urgent operation to relieve and bypass the blockage.

People with CF are prone to developing bone disease (thin, brittle bones) due to the nutritional and other problems involved with the disease. Adults with CF are at an increased risk of bone disease because of the adverse effects of steroids taken to control lung disease.

Although Cystic Fibrosis does not cause sexual impotency, it can lead to fertility problems. In most men with CF, the tubes that carry sperm are blocked, which causes infertility. Because underweight women are more likely to have irregular menstrual cycles, the nutritional problems associated with CF may affect fertility. Women with CF do produce healthy, fertile eggs so effective contraception is necessary.

Cystic Fibrosis can cause the blockage of small ducts in the liver. This only happens to approximately 8% of people who have CF, but it is a serious health risk and may necessitate a liver transplant

Tuesday 22 February 2011

He's bloomin mad I tell you!

The outside temperature was just about zero degrees last night, whilst I was in my garage I heard the sound of a cycle being pushed in the driveway next door. I thought 'surely not, not tonight', but Pete was readying himself for a 30 mile icy blast. As much as I love cycling, and I have been out in all weathers this winter, the lure of a warm sofa and a nice cuppa was too much for me! All I can say is Chapeau mate, total dedication!


The donations have been going so well that we have raised the original target from £1000 to £2000 now. Everyone has been so generous and kind. THANK YOU ALL!!

On Saturday Pete and I went into Cycles UK in Norwich on 'the scrounge' for a bit of sponsorship. Rob came up trumps with the promise of some team jerseys, free chain lube and some sound advice for the journey. I have been using the shop for 3 years or so now and the guys in the shop are always very helpful and very enthusiastic about cycling, whether you are buying a new bike or just popping in for a chat, I can personally recommend them.

Ruby and Phoebe have both been poorly with chicken pox over the last week or so, something I can recall from my 2 lads days as youngsters, but by all accounts the girls are on the mend and are getting back to their cheeky selves again!
The mercury is supposed to be rising towards the end of the week, thank god, hopefully within my few days off work I am going to get a few miles in on the bike. Lets hope we can all get out and about and enjoy the rest of half term!

Shaun .

Wednesday 16 February 2011

On the open road at last!

Ok so for nearly 2 weeks I've intended to get out on the bike and all my plans have been stopped for one reason or another.  Sunday looked like the day to get out at last. Sunday came and Ruby started running a temperature so Laura and Ruby spent most of Sunday at the hospital to which they confirmed the spots are chicken pox thus the high temperature and her not feeling to well.

On Tuesday the CF trust posted a link on Facebook to An article in the Guardian about a guy called Tim Wooton with CF, take a little time out to read the link he is an inspiration to us all.
http://m.guardian.co.uk/lifeandstyle/2011/feb/15/how-have-i-cheated-death-cystic-fibrosis?cat=lifeandstyle&type=article

It's now Wednesday and Phoebe has now got a few spots GREAT! But I still ventured out on the bike with a 2 hour window between getting back from work and tea at 9:00, how good was that 28miles @ 16.5 mph. It felt like i could have just kept on going (forest)

At the weekend Shaun and I should be able to get a few photos at last, also we are going to a local cycle store to try our luck at 2 free or greatly reduced cycle jersey's of which we will be able to get printed up for the ride.

Wow £864.57 on Justgiving, Thank you everyone.

Pete.

Tuesday 8 February 2011

Spring?


I recieved a phone call from Pete whilst I was at work last night, "I'll meet you outside when you leave off at 10pm". Sure enough he was there, having already done a quick zip around Norwich City centre, he then escorted me on my way home!
Not wanting to be outdone, I managed to do a 35mile trip around today, on my day off, and the weather was beautiful. Snowdrops and crocus flowers decorating the hedgeside and the sun beaming down, the day had a real feeling of spring about it.We are really fortunate where we live, the area is stunning and I would not want to live any where else in the country (we could do with some proper hills though).
A stark contrast to the scenery that the peloton are blasting through in the tour of Qatar at the moment! The riders are obviously 'testing' themselves in readiness for the spring classics, with breakaways within the first 5km of the race. It's hard to judge the speed they are riding as there are few points of reference along the way, just pure desert, but the peloton was travelling at 43mph for a good period of the race!
Here's hoping that we enjoy a few more days like today, the sun on my back and clean, dry roads. LOVE IT!!!
Shaun.

Sunday 6 February 2011

Blowing the cobwebs out

Well not such an early start today! after a lovely evening out with friends and cooking the girls the obligatory bacon and eggs i didn't get out the door until 11.
This gave me an hour of cycling which i think was enough in the wind sporting a mild hangover i only covered about 16 to 17 miles, This however was the day to get my highest speed on the flat I topped out at 31.6mph, (tail wind)

Ruby is now asking when i will finnish my book on her!! she still doesn't understand what the blog is, Bless.

Pete

Friday 4 February 2011

Who Said Norfolk is FLAT

Out on my efforts session last night started down then up Mousehold then down & up Ketts hill, but for the third time in a row that i've tried to climb gas hill I failed! I just don't seem to have the energy after a day of work. Good effort by Chris ( training for Lands End to Jon O'Groats ) he completed Gas hill twice.
For anyone who saw three blokes getting out of my work van togged up in cycling gear, we know it looks wrong! but funny!!

Pete.

Wednesday 2 February 2011

It's a wee bit chilly!



Morning everyone!

Well, the last two mornings have been cool to say the very least! My commute at 5.30 am each day has left me with very cold fingers! Frost on the ground making it decidely slippery on the bike. I am determined to carry on though, especially after just looking on the Justgiving web page; we are at £339.57 already. Thanks again to everyone for the donations.

This link made interesting reading today, hopefully we will not need one!
http://www.bbc.co.uk/news/uk-12334486

I had a wonderful weekend at a friends wedding, congratulations to Mike and Julee on tying the knot (20 years is the longest  engagement I have heard of !). Oh, the present Mrs. Nicholas is fine now thank you!
 I am well and truly back into my routine of gym,squash and cycling to try and rid me of  the weekends excesses, I would just like it to warm up a little!!

Shaun.

Sunday 30 January 2011

Come rain or shine

At last out on the road, with no cycling done this week I was itching to get out this morning.
It wasn't an early start, after cooking the girls there eggs and bacon breakfast which is now expected every Sunday morning.
I got all the winter gear on stepped outside to find the slightly sunny sky was actually a drizzly rain so head down and off I went 30 miles later I'm back home feeling pretty good, well until i looked at the bike which was brown from all the road grime.
While cleaning the bike the drunk (Shauny this also will be explained later By Ruby) turned up to tell me of the wedding antics And to point out the bits I missed while cleaning the bike.


I'm beginning to think Shauny is a little camera shy! We still haven't got the photos for our Justgiving site which I have to say for just over one week old is already at £264, Thanks all for you donations.


Pete.  

Friday 28 January 2011

WOW!!!

Pete text me earlier today. 'Look at the Justgiving page' were his instructions. We are at £264 already and we have only been 'live' for a week or so. A BIG THANK YOU to everyones donations, we are doing great thanks to you guys!!
Unfortunately I have part 2 of a friends wedding celebrations this weekend, not that I am not looking forward to it, it just means that I won't be out riding this weekend.
On a more very positive note Ruby has a new cousin on the scene! Congratulations to Jamie and Fran on the birth of Oliver James on Tuesday, I cannot wait to meet him.
Have a great weekend everyone,
Shaun x.

Monday 24 January 2011

Weather or not?


Well if it begins to pour with rain in the next few days you can blame me! After a very busy weekend of socialising (stag party) and entertaining friends (more alcohol) I managed to give my steed a damn good clean today. So, you can be assured that as soon as it leaves the shed tomorrow the heavens will open. We were supposed to organise a 'photo shoot' of us on the bikes at the weekend, but my plans were scuppered. Hopefully we can arrange it this week.Played squash and had a quick session in the gym before work today, my god did that hurt after the weekends shenanigans!!!

Saturday 22 January 2011

Physiotherapy



Physiotherapy is a way of clearing the thick, sticky mucus from the lungs. Parents are taught how to do this for their child by the physiotherapist in the CF clinic. Adults with CF can learn how to administer their own physiotherapy.
physiotherapy
Why is chest physiotherapy important?
Chest physiotherapy is important because helps to prevent the thick, sticky lung secretions from blocking the air tubes. This helps to reduce infection and prevent lung damage.
What different physiotherapy techniques are there?
There are a wide variety of airway clearance techniques and a Specialist CF Physiotherapist will assess a person with CF and advise on the most appropriate technique to use, and also on the length and frequency of treatment sessions. The technique used may change as you get older or as your disease changes. The amount of mucus you clear will also vary as your disease progresses.

Some techniques are done without any equipment and focus on specific breathing exercises:
  • Active Cycle of breathing Techniques (ACBT)
  • Autogenic Drainage
Other techniques use a device to aid clearance of mucus, by using positive pressure to hold open the airways, and some also create vibrations within the airways:
  • Positive Expiratory Pressure (PEP)
  • Oscillating Positive Expiratory Pressure - e.g Flutter®, Acapella®
Some techniques use large pieces of equipment which can be very expensive and therefore may only be available for use in hospital:
  • High frequency chest wall oscillation (HFCWO) - an electric air compressor connects to an inflatable jacket (vest) to vibrate your chest.
How much physiotherapy is needed?
The length of treatment sessions varies according to need. Daily physiotherapy is usually required and if you have a chest infection you may need to increase the amount of airway clearance you do. If there are few or no secretions, treatment sessions may only need to last 10-15 minutes. If there are many secretions, it could take as long as 45-60 minutes.
The number of treatment sessions should be varied. Most people do two a day when all is well, increasing to four a day when necessary. If no secretions are present, some people with CF only need physiotherapy once a day.
Your physiotherapist can advise you on how much physiotherapy is appropriate.
When should physiotherapy start?
Physiotherapy should start from the time of diagnosis.
Who should do physiotherapy?
At first, the adults that care for the child should do it. In time, relatives or friends should learn so that no one person becomes indispensable.
Breathing exercises can be introduced in the form of a game from the age of two or three. From around the age of nine, most children can start doing part of their physiotherapy for themselves.
Most teenagers become completely independent and only require help if they have increased secretions.
Keys and things
Had to pick ‘Fred’  (I will explain later) up tonight from after school club. We had a discussion about my cycle ride with her Dad and who else could come with us. I suggested that Ruby’s little pet doggy ‘Jack’ would love France, but quite rightly Ruby (Fred) explained that Jack does not speak French. The neighbourhood has a very well travelled Gnome that could fit the bill………watch this space.
Had a nice ride back from work today, sunny, no wind, no rain and a clean bike to boot!

Fund Raising.
Hi everyone, 
The moneys are adding up £170 to date, thank you so much to everyone who has donated so far.
The ride has been added to Facebook as an event today. It’s not just about the fundraising though, just as important is to raise awareness.
What is Cystic Fibrosis?
 Cystic Fibrosis (CF) is one of the UK’s most common life-threatening inherited diseases.
Cystic Fibrosis affects over 8,500 people in the UK.
Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
Each week, five babies are born with Cystic Fibrosis.
Each week, two young lives are lost to Cystic Fibrosis.
Around half of the CF population can expect to live over 38 years, although improvements in treatments mean a baby born today could expect to live even longer.
Thanks Pete. 
£145 and counting!!!!
Morning everyone,
After a long spell of cold,wet weather it has been a refreshing change on my daily commute to see the sun breaking throught the clouds, makes you feel so much better on the bike!
Currently the total is £145, thank you so much to all those who have taken the time to donate. Hoping to get a long ride out over the weekend, somewhere in the 60 mile mark, hopefully the weather will be kind to us. Need to get a new puncture kit again, another flat yesterday. Seems to be a common thing at the moment with all the grit and rubbish on the roads!!
Shaun.
Hi everyone,
I am trying to think of the moment at which Pete and I thought it would be a good idea to cycle to Paris from London. It wasn’t whilst I sat and watch Pete repair yet another puncture on one of our rides out, neither was it whilst we sat in a freezing cold bus shelter outside the ‘Bird in Hand’ at Wrenningham or was it when I lay on the tarmac after being bumped off my bike on a roundabout? 
The occasion eludes me at present, maybe during the ramblings of this blog we may uncover it. One thing can be sure, the reason for doing it is crystal clear. Ruby Moorhouse has Cystic Fibrosis and like her so many children have the condition too. If we can raise a little hope, a better quality of life, a cure maybe, for all sufferers of CF; anything is worth doing to help.
We have started a fundraising page on  http://www.justgiving.com/Shaun-Nicholas and preliminary routes, train transfers etc have been earmarked. As things progress we will keep you informed and up to date.
We have been riding together for a number of months now and the mileages are getting longer and longer, so come July we shall be fit and rearing to go.
I am looking forward to our challenge and cannot wait to get cycling in France. Hopefully this blog will give you an informed view of our experience and you can share it with us as we travel to Paris.
Shaun x.